A man from Manchester is opening up about the difficulties he is facing as his first Christmas following a life-changing diagnosis of epilepsy approaches.
James Stewart, 34, was diagnosed with epilepsy following his first two, traumatic seizures – one which occurred whilst driving and another in a swimming pool.
James is one of tens of thousands of people with epilepsy across the country preparing for their first Christmas living with the condition.
“I have a seven-year-old daughter, so you can imagine what a busy time it is for us. The challenges of epilepsy mean I can’t just go into Christmas the way I used to. I have to think about my triggers like over exertion and tiredness. If I push myself too much, there’s a real chance I could have a seizure and undo all the hard work I have done over the last couple of months” – James says
James’ diagnosis followed two frightening episodes. In the summer of 2024, he experienced a spontaneous brain hemorrhage while driving, later waking up in hospital after blacking out and crashing his car. Several months later he had a tonic-clonic seizure while in a swimming pool with his daughter and had to be rescued by lifeguards. He describes this incident as a turning point, the moment he realized just how disruptive and unpredictable epilepsy can be.
Since then, he has been learning what his triggers are, adjusting his routines and rebuilding his confidence in day-to-day situations that once felt straight forward.
Epilepsy Action says James’ experience is shared by many. Around 630,000 people in the UK live with epilepsy and for many of them the festive period brings added complexity. Disrupted routines, busy environments, and later nights can all increase pressure.
Philippa Cartwright, fundraising director for Epilepsy Action, said: “James’ story reflects what so many people living with the condition tell us. The festive season can be joyful, but it can also place huge demands on families who are managing the condition every single day. We would ask people to be mindful of the pressure others may be under – a little understanding and kindness can go a long way.”
Epilepsy Action is encouraging anyone with worries about managing epilepsy over the festive period to reach out early. The helpline team are kept incredibly busy in January with over 1,000 enquiries double the number they get in
James said the past year has reshaped every area of his life, from work and socialising to maintaining his independence.
He added: “Every part of my previous life has been affected. I’ve had to rethink my daily routines; be more cautious in situations I never used to think twice about. It’s been a huge adjustment but connecting with people going through the same thing – including through Epilepsy Action – has really helped. It reminds you that you’re not on your own.”
James hopes by sharing his experience more people will understand the reality of living with epilepsy and feel encouraged to support others not only at Christmas but all year round.
For more information about how you can support people living with epilepsy over the festive period visit: Christmas appeal – Epilepsy Action.
