Personal Independence Payment is no longer fit for purpose and is failing to keep pace with how disability, health and work have changed over the past decade
The interim report published today by Steven Timms comes as part of the first comprehensive review of PIP since the benefit was introduced in 2013 and sets out the evidence gathered so far to inform recommendations for reform due this autumn.
The report concludes that the assessment process is “dehumanising” and the system actively hinders people from seeking work.
Drawing on findings from more than 38,000 responses to the Review’s Call for Evidence, alongside workshops and engagement with disabled people, their organisations and experts, it is one of the largest co-produced reviews delivered by the government.
The report has revealed that while PIP is widely valued as a cash benefit, it is not working as intended for disabled people or wider society.
While many disabled people say that PIP is vital in helping them meet the extra costs of disability and participate in everyday life, others stated PIP creates barriers to participating fully in work, social and community life. This is particularly true for people with fluctuating conditions, less visible conditions or multiple conditions.
The process of claiming, under assessment criteria designed more than a decade ago, was viewed negatively by 90% of respondents, and described as at times “dehumanising”, “degrading” and “stressful” and the use of supporting evidence too often inconsistent. Only 5% of responses about the process were positive.
The Report also reports low levels of trust in the system and the need for it to be built back both for disabled people and those with long-term conditions, as well as for the taxpayer.
PIP was introduced in 2013 to contribute towards the extra costs of disability and support independent living but has never been fully reviewed despite shifting trends in health and disability, and changes in wider society and the workplace.
The Review launched last October with the aim of making sure PIP is fair and fit for the future in a changing world and helps support disabled people to achieve better health, higher living standards and greater independence including through employment.
It will also take account of related work underway across the wider health and social care system, including the Milburn Review into the increase in the number of young people who are not in education, employment or training (NEET). Both reviews are due to conclude later this year, providing a foundation for effective and sustainable reform.
The steering group will now continue to gather evidence through evidence sessions with experts and workshops around the country, while moving into the next phase: designing and testing recommendations for change, with the final recommendations due to be published this autumn.
Around 10 million working-age people report living with a disability – equivalent to 24% of the working-age population, compared with under 17% in 2013/14. There have been greater increases in the prevalence of disability among young people and a rise in mental health conditions. The Review must consider how PIP can remain sustainable within fixed financial limits and support future generations.
The report draws on findings from over 38,000 responses to a Call for Evidence, which describe an assessment process that fails to reflect real-life impacts, particularly for those with multiple or fluctuating conditions.
Yet the report also found that disabled people consistently describe PIP as a vital lifeline, allowing independence. Without it, many say they would become housebound, dependent on family, or in need of residential care.
Sharon Brennan, co-chair of the Review, said:
Improving trust in the system – both from the public and those going through the system – is vital if PIP is to be fit and fair for the future. Of those that responded to the steering group’s Call for Evidence, over 90% described negative experiences of the process of claiming PIP, with concerns raised around all aspects of the process from application through to assessment and appeals.
We are immensely grateful to the tens of thousands of people who have taken the time to share their lived experience and make a valuable contribution to this Review.
We’ve heard loud and clear: PIP is highly valued as a benefit but is not fit for purpose. We are committed to making changes so that PIP can fulfil its purpose.
